I made a minor change to the blog-changing everyone's name to an initial, because it was just too hard to keep up with their pseudonyms.
It is the middle of the night and I am still awake, even though I am really tired and want to go to bed. Miss M has been on a special diet for over a year with great success. The book says that after you've been symptom free for a year you can begin re-introducing "normal" foods, so this winter we started allowing her some grains and things. That was a really bad idea. She had a terrible relapse, so we immediately went back on the diet months ago, where she found almost immediate relief. So what does that have to do with me being awake in the middle of the night in March? Well, on Sunday we hosted a BBQ with some of our homeschool friends. Miss M snuck a bite of cookie and half of a hot dog bun and now she's feeling the effects of it, dancing around in pain because she can't sleep.
As I sit here tired and irrational, I can't help but think of these doctors I've gone to for help over the years who just dismissed me and told me to give her more fresh fruits and veggies. Really? First of all, M eats more fresh fruits and veggies than almost any child on the planet, and secondly, can you look me in the eye and tell me that it is totally normal to eat half a hot dog bun and a bite of cookie and be in pain for days afterwards?
I am so thankful for the diet and that it is really all we need to control her condition. I am wondering, though, if maybe we should pursue more testing, just to have a more definitive answer, if that's even possible. A friend of mine stated that if there's a chance your child has celiac's disease, that it's important to know for sure, because celiacs who cheat have much lower life expectancy than celiacs who don't. Besides celiac's, there could be any number of conditions out there she may have. Maybe her diagnosis is just "cranky gut" and there's nothing else they will be able to find wrong with her. Truth be told, I'm not sure I can get a doctor who will listen to me anyway. I don't really know what to do, so I will sit here in the doctor and ponder while M works through her pain.